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September 2011 :
A day with Fabienne Larouche to visit the recording studios of "30 vies"

 

2011 :
Part of the profits will be given to the foundation. Come get ready for fall with our advices and to drink a good glass of wine. Price and sample will be given away.

 

The appearance of the syndrome:
In the summer of 2008, I was traveling solo for over a month across Europe. I was in Belgium to begin the second part of my trip to Amsterdam, then Germany and the Czech Republic.

I was in my hostel in Bruges and I did not feel well. I thought it was probably motion sickness or indigestion. I rested, but five hours later, I did not feel better . Suddenly, I wake up. I find myself in the bathroom, sick and confused. Gentille co-boarder strongly advise me to go to hospital. After two refusals on my part, they call the ambulance anyway, taking care to contact my insurance and my parents. I lose consciousness.


Anick

I come back to me when two ambulance trying to lift me. I struggled and lost consciousness again. I wake up this time on a stretcher. Next to me, I see six ambulance sweaty before fainting again . In my third alarm, I am in the corridor of a hospital. I try to convince the doctor that I did not take drugs and before sinking again. We are July 30, 2008.
During the following days, I was transferred from the Belgian hospital where I am to a hospital in Amsterdam. The doctors believe in an overdose. My blood tests eliminate this possibility. As I am too weak to be transferred again, the next two weeks are devoted to giving me the strength to ensure safe transportation to Montreal. Off to a neurological hospital in Montreal is coming. We are August 14, 2008.
I wake up at last. What a surprise! I can not believe you with all my friends and family are there for my birthday of 26 years (August 22). In thanking them for all to have moved to Europe to see me, I realize that I am no longer the inn Belgian my last conscious memories. Trying to get up, I realize that I can not walk. I'm confused. My relatives tell me I'm in Montreal and I left Belgium three weeks ago by air ambulance. My parents picked me up in Amsterdam to provide support. I can not to believe, but as I am attached to my hospital bed, I understand that it will not.

Diagnosis: Opsoclonus Myoclonus Syndrome. Cause: Unknown. The following 29 September, I transferred to the Rehabilitation Institute of Montreal. I'd stay here until October 28. Fortunately, I have not experienced a relapse. I could learn to walk. For my psychological well-being, health authorities have agreed to allow me to go home under the supervision of my parents.

For three months I'm still in the hospital followed a few hours per day (treatment in physiotherapy, occupational therapy and nutrition). I then referred to the Shield (Rehabilitation Centre) to accompany me back to work. J 'I also used the services in psychology, neuropsychology, occupational therapy, physiotherapy, speech therapy, ear, nose and throat, as well as osteopathic oncology and family medicine in prevention. Even my driving was evaluated.
Since September 2009, I no longer take any medication. I gradually decreased the dosage and I had to undergo detox side effects that were similar to symptoms of the disease. I have been working full time in November 2010 in a rehabilitation center for developmental disabilities. I am still trying to find my old skills and abilities by participating in the activities of fine and gross motor as well as intellectual activities without the support of professionals.

My treatment:
Docusate sodium, Clonazepam, vitamin B1, Rivotril and Levetiracetam. During my hospitalization at the neurological hospital, I also remember two IVIG treatments and two lumbar punctures.

Rehabilitation process at work:
In the summer of 2010, following inconclusive assessments, the SAAQ gave me my driver's license. I was very happy! Then I started to volunteer. In spring 2010, I made a three-month internship at my old work with children with autism, a progressive and always supervised. During the summer, I was hired on call (hours week) in an early childhood center. I felt ready to do more hours. Last October, I was involved in a rehabilitation center for developmental disabilities. I started four days a week. After a month, I felt comfortable when I went full time. Today, I am still working 35 hours per week, as agents of human relationship and I'm in great shape.

Sequelae:
I have long hesitated to return to work because I got tired very quickly. I slept at least ten hours a night, plus a few hours nap in the afternoon. At first, I could be awake for three hours a day, but I felt a mental agitation and muscular. I suffered from dizziness, nausea and fainting with heat. My body was not accustomed to so many activities and attention. Gradually, with exercises and improving my nutrition, the symptoms have faded.

Today, the legacy that persist are: balance disorder, headache, heart, heat, shaking the legs, hands and a little voice. I can not write by hand more than 15 minutes, so I use a computer. With regard to fine motor skills, I'm doing well, but I have trouble for long periods and what I do is of lower quality than before. I find it very demanding. Fortunately, these effects are not present 24h on 24h. Before, I excelled in sports, but now I have much more traction and much physical strength. I had to put some things aside: the competition shoes (because I am no longer advanced by a straight line), high heels and nail polish! I always sleep much, on average 9 hours per night, but I no longer nap.

This seems a lot, but its consequences do not affect my daily life. Is not my intention to worry over the future. I compensated and have fun otherwise. I worked a long time with a psychologist to mourn my ability to enjoy and to do otherwise. When people meet me, they do not know I had the WHO. Those who know are very surprised and happy to see my progress. I am very happy with the life I lead now. I have described the effects of the disease with which I now live, but I'm still hopeful, because I do continues to grow. Since last summer, I'm no treatment and I do not consult any specialist. I am very proud of my progress and I want to share that trust with all other people.


Feel free to contact me via Facebook "Anick Normandin." I look forward to sharing with you!