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September 2011 :
A day with Fabienne Larouche to visit the recording studios of "30 vies"

 

2011 :
Part of the profits will be given to the foundation. Come get ready for fall with our advices and to drink a good glass of wine. Price and sample will be given away.

 

Clemence was small section of kindergarten, when the first symptoms appeared. We first thought of a cold in the hips ...

His condition did not improve, it worsened. Then the doctors began to send him various reviews that have nothing shown.

The days passed and his condition deteriorated, she did well, did not speak, could not eat, she had become an infant, in a body of a 3 year old girl, she lost control.

She needed to be surrounded by pillows, stuffed animals, a small space where she felt safe.

She self-harm was very irritable, the smallest annoyance, as it is triggered uncontrollable seizures, she had no marks.

Then, after further examinations, the doctors told us that our daughter was diagnosed with opsoclonus myoclonus syndrome, which usually occurs around 18 months.

Clemence was seriously wrong. She was transferred to a cancer center. She had a tumor on the spine, no chemotherapy, but injections of immunoglobulin, and corticosteroids in high doses.


Clémence


She had surgery and soon she entrusted herself to walk, talk, eat. We continued the treatment for over a year, we reduced the dose gradually.

MRIs were separated, and 3 years ago, the oncologist has declared full remission. We always see the neurologist, and is always followed by a speech therapist and a psychiatrist.

Clemence turns 10 in June, it's fine. His education is difficult, but it hangs, it is very courageous. Later she wants to be a nurse.