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September 2011 :
A day with Fabienne Larouche to visit the recording studios of "30 vies"

 

2011 :
Part of the profits will be given to the foundation. Come get ready for fall with our advices and to drink a good glass of wine. Price and sample will be given away.

 

Trousseau Hospital in Paris found a neuroblastoma in the chest at Jade. It was in 2009. She was then 21 months.

After several tests, it was followed for 6 months in hematology. Intense course of chemotherapy in the treatment interval with corticosteroids is the neurology department to treat this syndrome opsomyoclonique due to cancer.

In every month we went to Trousseau week.


Jade

It was operated in August 2009, this tumor. The operation was a success!

Jade is always followed in neurology for these courses of corticosteroids, but since January 2010, his body is resistant to corticosteroids. So protocol change + endoxan corticosteroids (chemo) 4 days per month + cures 1fois/mois immunoglobulin.

She has had this treatment until July 2010. She always had a slight ataxia. His eyes "dance" when she was tired.

Opsomyoclonique This syndrome is rare, and symptoms include seizures, tremors of the body, eyes commuters, unable to calm his seizures, which are involuntary safe and even dangerous since she banged her head on anything and bit his hand . It was unbearable.

Of course, Jade's language delay. She always speaks his jargon, and she walked at 27 months with ataxia.

In September 2010, I sensed a slight relapse. She became irritated and easily swayed by the time walking. Actually seen a slight relapse. So the third protocol. Rutiximab infused over 4 hours / week for 1 month followed by his last three immunoglobulin treatments!

It is followed by regular chest X-rays, scans, scanner, evoked potentials, audiometer. It has an implantable because due to these crises, she always pulled his catheter.

Since November it's going better. Always a little bit of irritability that trigger at all times but manageable compared with what we experienced.

Right now it is evolving quite well. There are ups and downs of course! Right now his blood work is good, bitter Trousseau there is no relapse, but they told me not hide it risky to have sequelae: behavior, mood swings, sleep disturbance. ..

Jade's father died in 2008, Jade was 8 months when it is gone, or is grafted to another concern, when the time comes to tell him about his dad!