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September 2011 :
A day with Fabienne Larouche to visit the recording studios of "30 vies"

 

2011 :
Part of the profits will be given to the foundation. Come get ready for fall with our advices and to drink a good glass of wine. Price and sample will be given away.

 

Laurie-Ann Duchaine was born March 17, 2002 one. You could say it was a perfect baby. Born at 40 weeks pile, it was very advanced for his age (walking at 10 months).

Three weeks after his first birthday, Laurie-Ann began to have loss of balance. It would have been easy to put it down to the fact that it was not long as it worked but not. A few days later, his eyes started to move very quickly. A bit like seizures but in the other direction. Followed that of uncontrollable crying and trembling of the upper and lower limbs (like a Parkinson's).

After several doctors intervened in the case not knowing what she had, diagnosis fell by a neurologist. Laurie-Ann suffers from the syndrome of opsoclonus myoclonus.


Laurie-Ann


The first thing to determine at the outset is whether Laurie-Ann to a tumor called neuroblastoma because in 50% of cases of this disease, this is caused by the tumor. Otherwise, it is a viral disease known.

After several tests, no neuroblastoma is detected. The doctors decided that to treat his disease, oral cortisone and intravenous sufficient to restore control of the body of Laurie-Ann.

During the following year, Laurie-Ann begins to walk, to do normal activities as a child of his age. Unfortunately, the worst happens at the age of 2 years. Laurie is so swollen (due to the cortisone) she should be hospitalized for emergency respiratory problems. However, doctors discovered that Laurie-Ann also is paralyzed legs. No more signal and X-ray, doctors discovered a job at the back which could mean a serious problem.

Laurie-Ann was spirited to undergo osteomyelitis, in other words, a compression of the spinal cord. A side effect of cortisone it can create for osteoporosis and that's what happened at the spine. Two vertebrae (D4 and D5) were crushed on the spinal cord which automatically makes paralysis.

An orthopedic practice deemed to have a very delicate operation. It completely removed the two vertebrae that compresses the spinal cord, he replaced them by a score floating and merge it to the help of two metal rods (D4 to D10). This operation lasted over 10 hours and this operation due to be served twice. The rehabilitation would be very difficult for Laurie-Ann.

Three weeks in intensive care in an induced coma, wearing a halo for three months, six months to stay sleeping in a bed, six months have to wear a back brace, six months in a rehabilitation center to learn to walk, to sit, to eat.

Despite a huge backlog of development, Laurie-Ann was able to walk again. Despite this battle won, the war for his illness is not, however. Laurie-Ann has developed an addiction to cortisone. Not to the same story from recurring, doctors try to wean cortisone. Unfortunately, six to eight months later, Laurie-Ann re always a relapse of the disease by starting to fall everywhere, shaking etc ...

Several treatments have been tried to date or gamma globulin, plasmapheresis, anti CD20, of chemotherapy.

What is the most dangerous for Laurie-Ann, that's not sick as such but all she has to undergo treatment. His immune system is very low, it is carried to catch any kind of infection including the H1N1 or the C. difficult.

Today in 2011, Laurie-Ann is undergoing chemotherapy and in cortisone. She goes into a regular school, she dance classes and gymnastics and has found a balance despite remaining tremor. She is currently in withdrawal of cortisone and everything goes well so we hope that this time is the right one.