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September 2011 :
A day with Fabienne Larouche to visit the recording studios of "30 vies"

 

2011 :
Part of the profits will be given to the foundation. Come get ready for fall with our advices and to drink a good glass of wine. Price and sample will be given away.

 

In July 2007, Tyler received a diagnosis of a very rare and debilitating called WHO. WHO is so rare that only a child about 10 million are diagnosed each year as the disease reached the United States.

WHO is an autoimmune neurological disease in which the body's ability to fight infections is compromised and sends an army attacked the brain, which causes paralysis and developmental problems.

Tyler suffered multiple relapses and several battles and continues to inspire and amaze us with every day.

The last major relapse of Tyler was in September 2008 when it lost the ability to walk again and multiple relapses in motor and cognitive.


Tyler


She had so far since her diagnosis in July 2007 and this news was devastating for us.

In October 2008 we decided to do business with a world-renowned expert in the research and clinical WHO Springfield III when they had discovered new ways to fight against this disease.

This meeting was wonderful but very difficult for Tyler and me but we are very pleased to have done.

Dr Pranzantelli Springfield III has worked with children with WHO for 20 years now and has done extensive research to find a cure for this terrible disease.

In his research, he was able to identify some markers that separate the normal children and children with WHO.

Children with WHO over B and T cells in the brain cells that attack the good that children in good health.

Tyler was 2 ½ times the normal limit of B and T cells present in the cerebrospinal fluid, the same quantities as in his brain.

In December 2008, we changed our approach to the disease and Dr. Prantzantelli believed the best way to combat this disease was with chemotherapy and treatment of immunoglobulin.

Since that time we use a drug called ACTH (a steroid that suppresses the immune system and prevented the attacks).

HLDAA is a very powerful drug that can cause very large effects. The key to good this medicine is to give a large dose of the drug and then slowly decrease it in order to eventually wean the child within a reasonable time.

Tyler took this medicine for a little over a year now and believes that Dr. Prantzantelli is too long.

For cons, the mystery is that we can not withdraw the drug without weakening then we should keep the medication a while in addition to other treatments.

Keep Tyler and our family in your prayers during this long battle. We must hope that God will guide us and give us peace and understanding that we need.

In October 2009, Tyler eventually be weaned ACTH stinks and it was wonderful to see progress!